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The Terri Schiavo case presented an array of challenging moral, philosophical
and legal questions as it moved through the American judicial system.
Without
question, these are difficult issues. No one wants to envision a day in which
they, their spouse, or a parent is in such a medical condition that they cannot
make decisions for themselves. But whether you are old or young, healthy or ill,
it is never too early to start thinking about who you want making decisions for
you in an emergency, how you would want key health care decisions handled, and
what your basic desires are.
I. Incapacity Planning
What happened in the Terri Schiavo case? Terri,
age 27, suffered a cardiac arrest in February 1990. She was rushed to the
hospital. She never regained consciousness. Since 1990, Terri lived in nursing
homes with constant care. She was fed and hydrated by tubes. She had numerous
health problems, but none had been life threatening. The court concluded that
Terri was in a permanent or persistent vegetative state. It is important to
understand that a persistent vegetative state is not simply a coma. She was not
asleep. She had cycles of apparent wakefulness and apparent sleep without any
cognition or awareness.
What was the legal issue? Like many young people without children, Terri
Schiavo had not prepared a will, much less a living will. As the court said, it
is understandable why a parent who had raised and nurtured a daughter from birth
would hold out hope that her health would improve over time. In fact, if Terri
was our own daughter, we would hold on to such faith, too, the court added. On
the other hand, Michael Schiavo, Terri's husband, believed that Terri would not
want to be kept alive artificially in her current state of health. The issue
before the court was this: what would Terri want? What were her wishes?
How can this be avoided? Had Terri Schiavo prepared advance health care
directives outlining who she wanted making decisions on her behalf and how she
wanted to be cared for, the battle over her care could have been avoided.
Unfortunately, she left no written directions, leaving her parents and husband
to argue her fate in the courts. Even more unfortunate is the fact that she has
plenty of company.
According to a study published in 2002, four out of five
Americans do not have a living will or any other advance directive to help their
families make decisions for them if they become incapacitated. As a result, too
many families are forced to make wrenching decisions about loved ones without
proper guidance. Advance directives, if done right, accomplish four
things: 1. Ensure that the person you want to speak for you has the legal
authority to do so. 2. Help ensure that your wishes about your health care
are known and respected. 3. Avoid unnecessary, intrusive, and costly medical
treatment at the point you not longer want it. 4. Reduce the suffering
experienced by your loved ones, because they will have your guidance. An
end-of-life advance directive in the form of a living will would have clearly
let the family members know Mrs.
Schiavo's wishes.
What is a living will? A living will contains specific instructions about
what you want done regarding withholding or withdrawing life-prolonging
procedures in the event that you have a terminal condition, an end-stage
condition, or are in a persistent vegetative state. A living will should not be
confused with a legal will, described later.
Can you describe each condition briefly? Terminal condition: A condition
caused by injury, disease or illness from which there is no reasonable medical
probability of recovery and which, without treatment, can be expected to cause
death. End stage condition: An irreversible condition caused by injury,
disease or illness that has resulted in progressively severe and permanent
deterioration, for which, to a reasonable degree of medical probability,
treatment would be ineffective. Persistent vegetative state: Permanent and
irreversible condition of unconsciousness in which there is an absence of
voluntary action or cognitive behavior of any kind, with an inability to
communicate or interact purposefully with the environment.
What are life
prolonging procedures? Any medical procedure, treatment or intervention which
sustains, restores or supplants a spontaneous vital function. The following may
be considered such interventions: Artificial nutrition and hydration
(providing food and water through tubes) Resuscitation Placement of
ventilator or other mechanical devices Surgical procedures, blood
transfusion and intensive care unit placement Chemotherapy or radiation
therapy, unless there is substantial medical probability that the condition will
materially improve
Once I prepare a living will, I am done, right? No. Declaration of living
will is the beginning, not the end of this process. Broadly speaking, incapacity
planning involves planning for (1) health care and (2) managing your
personal/business affairs in case you are incapacitated due to injury or
illness.
I thought living will took care of health care part of incapacity
planning? Living will addresses only life prolonging aspect of incapacity
planning. Advance directives address all remaining health care issues arising
from incapacity. Advance directives are a set of documents/instructions that you
have prepared (needless to say, in advance), that serve to convey your wishes
regarding your medical care in the event that you are not able to give the
directions yourself.
How can I address the remaining health care issues? A health care
surrogate designation can be used to appoint a surrogate (any competent adult
expressly designated by you to make health care decisions for you if you are
incapacitated). The surrogate also signs "informed consent" documents
authorizing the medical personnel to initiate treatment. Living will and health
care surrogate designation are part of a group of documents called "advance
directives".
Basically, advance directives allow me to express my preferences concerning
medical treatment. Wouldn't the physician do what is in my best interest
anyway? Physicians prefer advance directives because they provide a written
expression from you as to your medical care and designate the person that the
physician should consult concerning the decisions about your medical care.
Rather than the physician having to obtain a consensus answer (see earlier
discussion on Terri Schiavo) from your family members as to your treatment, the
physician knows your preferences and knows who will make decisions when you
cannot do so.
Advance directives provide your expressed wishes, rather than
making the family guess your desires. Making your wishes known in advance
prevents family members from making such choices at what is likely one of the
most stressful times in their lives. In addition, providing such information and
designating a surrogate means that the physician knows whose direction is to be
followed in the event that your family members disagree as to what medical
treatment you would want, as was the case with Mrs. Schiavo.
What about financial decision-making if I am incapacitated? That's the
second part of incapacity planning. A durable power of attorney (DPOA) can be
used for this purpose.
What are the functions of a DPOA? A DPOA is a legal
document delegating authority from one person to another. The maker of DPOA
grants the right to act on maker's behalf under certain conditions. A DPOA can
be very broad or can be narrowly tailored for specific situations. Thus, a DPOA
is an important and powerful document, as it can give the "agent" or
"attorney-in-fact" the right to do almost any legal act that the maker of the
DPOA could do, including sell a car, home or other property, sign a contract,
handle financial transactions or sign legal documents for the maker. A DPOA can
also grant the authority for making health care decisions as an advance
directive.
What about organ donation? An organ donation form is an advance directive.
It allows donating your organs to save another life after you have died (an
anatomical gift).
Where should I keep my advance directives? Advance
directives serve as your "voice" and hence, they should be accessible. In
addition, your surrogate, family and physician should have a copy. It is a good
idea to bring a copy with you each time you are admitted to a hospital or ask
someone to bring it for you.
What do you mean by "life planning"? We are or should be, in a perpetual
planning mode during our lifetime. Some of the planning activities are:
Career planning: Our education and employment (or business ownership) including
advancement, career change as well as compensation and benefits calculations at
every stage of career planning. Retirement planning: Projecting income and
expenses when full time employment ends and devising the means of how those
expenses shall be paid for. Tax planning: Legally minimizing payment of
(primarily) income taxes. Financial Planning: Developing and implementing
sound investment strategies in order to preserve and enhance our wealth.
More
often than not, we ignore the life planning, which consists of: 1. Planning
for incapacity when we are alive. 2. Planning for preservation as well as
appropriate distribution of our real and personal property upon
death. Unfortunately, some of us pay a heavy price for procrastinating on
life planning. Sounds like I am not done when I complete my incapacity
planning, either….. Correct. The preservation and distribution of your real
and personal property (including bank accounts, stocks etc.) involves estate
planning.
II. Estate Planning
What are the basics of estate planning? Estate
planning is the accumulation, conservation and distribution of wealth. In
majority of cases, incapacity planning is addressed in conjunction with and as a
part of the estate planning process. Generally, a will is the starting document
in this process.
A will provides for distribution of real and personal
property owned by you at the time of your death in any matter you choose
(subject to state laws that may prevent disinheriting spouse and in some cases,
children). Your will can not, however, govern the disposition of properties that
pass outside the probate estate (such as certain joint property, life insurance
and certain other contract based arrangements). In addition, you can designate a
guardian for your minor child in your will.
What are other estate planning vehicles? Depending on your situation, a
revocable trust may be an appropriate dominant estate planning strategy, rather
than just a will.
Why is estate planning such an important part of life planning? A
comprehensive estate planning process anticipates and plans for continuity of
your family unit as well as your business activities after your death. After
all, you want your family and business to continue growing and benefiting from
your legacy. In other words, you want to implement family succession planning
and business succession planning to preserve and enhance your wealth in order to
continue supporting the people that you care about deeply. The "out of sight,
out of mind" mentality by avoiding estate planning may have adverse impact on
those that you worry about the most- history is full of examples of well-known
people who did not have the foresight to engage in estate planning, with often
disastrous results.
How does estate tax compare to income tax? In 2003, the maximum estate tax
(frequently called "death" tax) was 49%. It changes from year to year and there
are exemptions which also change. The future of estate tax is unknown- it ranges
from total elimination to an increase from current rate by lowering the
exemption amounts. Estate planning process takes estate tax into consideration
and implements strategies to minimize it.
But, I am not wealthy- why should I worry about estate planning? Let's
start with the basic question: how do you define "wealth"? If you think you have
to be a millionaire in order to be considered a person of wealth, think again.
The best way to define "wealth" is to look at it from the perspective of
Internal Revenue Service (IRS). The fundamental inquiry should be: did you pay
taxes last year? If you did, than according to IRS, you are wealthy.
Undoubtedly, you spend significant time (and money in many cases) every year to
minimize your income tax. Isn't it logical to spend at least some time to
minimize "death" taxes and plan to support your family and business interests
upon your incapacity or death?
Are there any other elements to estate planning? Many view asset
protection as part of this process. We live in a world of financial and legal
uncertainty. Any person in today's litigious society is subject to financial
risk resulting from lawsuits based on a variety of theories of liability:
Professional malpractice Business liability Landlord liability
Automobile liability (in excess of insurance coverage) Household liability
(issues range from dog bites to swimming pool accidents or worse case scenario,
death) Asset protection planning involves protecting a person's assets from
future potential creditors to the extent legally possible. It is structured to
deter a future creditor to pursue litigation as the remedy.
III. Conclusion
The Terri Schiavo case is an important reminder to give a
high priority to designing the appropriate "life plan". Frequently, this
involves a detailed discussion between the lawyer and the family as well as
identifying answers to often difficult questions. On the other hand, in many
instances, the process is straightforward and strategies to be implemented are
obvious. The case ended with courts ruling that Terri would not want to be kept
alive artificially. It shows that avoiding life planning may not be a wise
option.**
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